News

Recent Posts

• Rhythm Pumps $100M Gained in Voucher Sale Back Into Imcivree January 11, 2021
• Setmelanotide Lowers Weight, Hunger in Bardet-Biedl Syndrome, Phase 3 Trial Shows January 4, 2021
• Fruit Fly Model Cost-effective for Screening Obesity-related Genes December 21, 2020
• Study: Genetics Have Little Effect on Response to Weight Loss Interventions in Children December 17, 2020
• High Genetically-predicted BMI Raises Risk for Rheumatoid Arthritis, Study Suggests December 14, 2020
• Radiation Therapy for Childhood Leukemia Alters BMI Heritability, Study Finds December 10, 2020
• FDA Approves Hetlioz for Sleep Disturbances in Smith-Magenis Syndrome Patients December 7, 2020
• Leptin’s Effects in Weight Control May Fade With Age, Study Contends December 3, 2020
• NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting December 2, 2020
• Imcivree (Setmelanotide) Becomes 1st Treatment Approved in US for 3 Rare Obesity Disorders November 30, 2020
• Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe November 23, 2020
• Higher COVID Infection Risk Seen in Those With Genetic Obesity, ‘Bad’ Cholesterol November 19, 2020
• Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry November 18, 2020
• Weekly Setmelanotide Still as Safe and Effective as Daily Formulation, Trial Data Suggests November 12, 2020
• Genetic Predisposition to Obesity May Protect Against Breast, Prostate Cancer, Study Suggests November 9, 2020
• Obesity Can Cause Kidney Disease, Genetic Study Suggests November 5, 2020
• NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits November 2, 2020
• MicroRNA Seen as Possible Target for Treating Obesity-related Disorders October 29, 2020
• UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner October 26, 2020
• Differences in Obesity-related Genetics Found Between Japanese and European Populations October 22, 2020
• Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say October 19, 2020
• Additional Genetic Changes May Contribute to Bardet-Biedl Symptom Severity October 15, 2020
• Multiple Factors Seen to Underlie Bardet-Biedl Symptoms in 2 Brothers October 12, 2020
• New Mutation Identified in Bardet-Biedl Patient With Concurrent Rare Disease October 8, 2020
• Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos October 6, 2020
• LTF Gene Variants May Increase Risk of Metabolic Syndrome in Obese Individuals, Study Says October 1, 2020
• Efforts Continue Beyond Awareness Month to Expand Newborn Screening Panels in US September 30, 2020
• Study Identifies Obesity-associated Brain Cells September 28, 2020